They Were Expecting A Healthy Baby But Their Lives Changed When They Saw Her
Harlequin ichthyosis is a difficult condition, requiring frequent moisturising of the skin. Her parents are sure that she gets a two-hour bath several times a day to keep her skin from cracking.
Her skin also has to be treated every few hours with a healing cream and she gets skin treatments. Occupational and physical therapy are a regular part of her life.
In order to satisfy the needs of the little girl, she has to eat about 2100 calories per day. As long as she sticks to the special dietary regimen, she is a relatively healthy girl, despite her skin condition.
Anna was able to endure and she has captured the hearts of many because she is the ‘epitome of perfection in his purest form.’
Her mother went on to say that she found strength doing everyday things, and she loved being with her little girl. Anna still continues to do well with the help of her parents, and she is turning six in September.
We wish for many more years of happiness.